Citizens, Your Health, Your Health Data, Genomics and the Future
On 24th June 2011, patients, clinicians and managers from Tameside & Glossop and further afield came together to discuss the importance of our health, our data, genomics and the future. Hosted by Manor House Patient Participation Group and Haughton Thornley Patient Participation Group in Glossop, the meeting was an opportunity for us to understand the issues in a relaxed atmosphere.
Interlude 1
The Planet and DNA
Music and words composed by George Milburn. Spoken by Melvyn Warhurst
The House of Lords report 2009
By Dr Richard Fitton
Biobank - a participant's experience
By Sheila Mills
Click here to watch a video by the BBC on the UK Biobank
NHS National Genetics Education and Development Centre & Family history tools
By William Foster
Records Management and The Records Lifecyle and discussion
By Dr Richard Fitton
Interlude 2
The Planet and the Holocene
Music and words composed by George Milburn. Spoken by Melvyn Warhurst
Health Technology, Genomics & Social Responsibility
by Julie Barnes
The epidemic of obesities and consequences: a catastrophe ?
Dr Richard Fitton
Steve
By Julie Barnes
Citizens presenting their family histories
by Dr William Goldthorpe
Health Interfaces for Citizens
by Glen Griffiths
Processing Health Data
By Dr Amir Hannan & Margaret Rickson
Handling my Family's Healthcare & Data
By Yvonne Bennett
Consent, Data Protection Act and Partnership of Trust
by Dr Amir Hannan
Questions and Answers
The following 2 interludes had been planned to be delivered on the day. But as time ran out, they were recorded at a later date with a small patient audience to discuss the conclusion to the day and how data and in particular health data can lead to sustaining the planet.
Please feel free to send emails to Dr Richard Fitton on richard.fitton1@btopenworld.com if you have any further questions.
Programme for the Day
June 24th Bradbury House, Market Street, Glossop
09.00 – 09.10 Welcome - Mayor of High Peak and The Glossop Chronicle
09.10 – 09.25 Interlude 1 - "The Planet and DNA”
09.30 - 09.50 "HOUSE OF LORDS Report Genomic Medicine”
09.50 - 10.10 UK Biobank
10.10 - 10.30 "The life cycle of records and creating a family history”
10.30 – 11.00 Discussion – Citizens’ roles in the processing of genomic data
11.20 – 11.35 Interlude 2 "The Planet and the Holocene”
11.40 – 12.00 ‘Health, technology, genomics and Social Responsibility’
12.00 - 12.20 "Resourcing diabetes and its’ future economic burden”
12.20 - 12.40 "Stress, lifestyle and diabetes – a case study’
12.40 - 13.00 Citizens presenting their family histories
13.50 – 14.10 "Health interfaces for citizens”
14.10 – 14.30 "Processing health data”
14.30 – 14.50 "Handling my family’s health care and data”
15.10 – 15.30 "Consent, the Data Protection Act and a partnership of trust”
15.30 – 16.00 – Discussion
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